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Baby born with rare skin disease hopes to receive life-saving treatment in Houston

Posted: 2:53 PM, Apr 12, 2019
Updated: 2019-04-12 21:53:48Z
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SAN ANTONIO, Texas (KTRK) -- — A Texas baby who was born with a rare condition has been transferred to Houston's Texas Children Hospital for a potentially life-saving treatment.

Ja'bari Gray was born on Jan. 1, 2019 with a severe case of the rare skin disease Aplasia Cutis, WOAI reports.

Gray's mom, Priscilla Maldonado had what appeared to be a normal pregnancy, but due to the skin disease, her baby was born without skin from the neck down.

"They said this is the third case in the United States. They don't know how to treat it. They're treating it as burns," Maldonado told WOAI .

Since his birth, Ja'bari has been on life support and doctors have told Maldonado there is nothing more they can do.

After a battle with Medicaid, the health insurance company approved to a medical transfer from San Antonio to Houston for a treatment that could save little Ja'bari's life.

According to WOAI, the family has set up a GoFundMe page in order to help with medical bills and expenses.

This story is courtesy of our ABC affiliate, ABC13 in Houston.